- Adding Conditions to State Newborn Screening Panels: Recommendations for Decision Makers
- Newborn Screening: Four Facts Policymakers Need to Know
Legal and Legislative Issues in Newborn Screening
State newborn screening programs are subject to a variety of legal, social, policy and legislative issues. We monitor the legal landscape to keep you informed, produce resources to guide decision-making and advocate on your behalf with position statements on critical issues.
Questions?
Contact the Newborn Screening and Genetics team: [email protected]
What We Do
Monitoring the Legal Landscape of Newborn Screening
APHL collaborates with state newborn screening programs and legal counsels to monitor legal and legislative issues affecting state newborn screening programs, and disseminates related policy resources. We conduct these activities through the Newborn Screening Committee’s Ethical, Legal, Social, and Policy Issues Subcommittee.
Your Resources
Legal and Legislative Resources
Advocating For You
APHL Position Statements on Newborn Screening
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Link NBS Programs with Vital Records for Accurate Coverage
Sunsets July 2030To optimize newborn screening efforts, it is imperative newborn screening programs are integrated with vital records systems.
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Newborn Screening Short Term Follow-up
Sunsets June 2028Timely, efficient and integrated short term follow-up programs are a critical and necessary component of a successful newborn screening system.
- All APHL Position Statements